Ivor Tiefenbrun MBEFounder and Honorary President
Ivor is the Founder & Executive Chairman of Linn Products Ltd. He founded Linn in 1973, and his Sondek LP12 turntable design which started the company went on to become the reference standard turntable worldwide and remains in production to this day.
Diagnosed with ulcerative colitis in 2002, his personal experience prompted him to set up C3.
Ivor and Linn have recently initiated and sponsored a stem cell specialisation research project involving three Scottish Universities, and agreed to chair a similar broad-based joint University research project on a specialised stem cell application.
Ivor is a Visiting Professor in The Department of Design Manufacture and Engineering Management at Strathclyde, a member of The William Robertson Society at The University of Edinburgh in recognition of his charity work and a founding member (and Hall of Fame inductee) of the Entrepreneurial Exchange (now Entrepreneurial Scotland).
Ivor lectures extensively on business, design, manufacturing methodologies, marketing and strategy at Universities, Think Tanks, research establishments and businesses, and business events and conferences. He is an occasional columnist for various publications, business mentor and consultant to manufacturing businesses around the world.
His personal interests include helping people, manufacturing and engineering, boating, history, current affairs and economics, music, reading and the arts.
Roy is a solicitor working in the affordable housing and care sector based in Glasgow.
He has a keen interest in the not for profit sector and has served as a Director with East Renfrewshire Chamber of Commerce.
He was diagnosed with Ulcerative Colitis in 2009.
Roy has been a Trustee of C3 since 2013 and was appointed as Chair in July 2016.
His interests include golf, hillwalking and (trying) to keep fit.
Dr Daniel R GayaIBD research consultant
Consultant physician and gastroenterologist based at Glasgow Royal Infirmary.
Daniel has a special interest in Inflammatory Bowel Disease (IBD) and receives tertiary referrals for the management of complex cases. He runs two weekly adult IBD clinics and in addition organises a transition clinic with colleagues at Yorkhill for adolescents with IBD.
Daniel provides clinical insights to the board which are invaluable when deciding which IBD research projects to invest funding in, based on how the outcomes will benefit Crohn's Disease and Ulcerative Colitis patients in the future.
Sahara Fleetwood-BeresfordMarketing & Comms
Sahara’s background is in marketing. She specialises in digital media and content creation.
She runs the charity’s social media accounts and offers her marketing expertise.
She was diagnosed with Ulcerative Colitis in 2007 and had surgery just one week later. She’s battled multiple surgeries, treatments, a plethora of complications, extra-intestinal manifestations and the mental effects of IBD since. She now lives with her 3rd ileostomy which is a permanent fixture, after a failed Jpouch. All have played a part in Sahara’s decision to raise awareness, fundraise and offer support to other IBD sufferers.
Sahara was awarded ITV Central’s ‘Pride of Britain Fundraiser Award’ in 2015.
In her spare time, Sahara runs IBD fundraising and awareness project and support group - #IBDSuperHeroes.
Her passion for raising awareness in the hope of finding a cure with the help of research funded by Cure Crohn’s Colitis never wavers.
Dublin-born Nicola Dames' life changed forever in her early 20s when she started to suffer from Ulcerative Colitis.
At the young age of 29, Nicola - a former high-end Fashion Consultant at the famous Brown Thomas, as well as an NHS Intensive Care Nurse - decided to go ahead and have her large colon removed.
She felt she had tried everything. Married only one year. She wanted to have children with her husband. She wanted to have a future and a life.
Nicola researched all the medicalised underwear available. She decided she would set up her own business, Vanilla Blush, to make medically sound but also fashionable underwear for people with a stoma.
Nicola now brings her experience as an ostomate and businesswoman to Cure Crohn’s Colitis as Treasurer.
Liz is a qualified journalist in print and digital and has more than 25 years experience as a staffer and freelance in local, regional, national newspapers, and magazines.
Much of her work now also takes in online journalism and social media.
A member of Liz’s family has Crohn’s disease and she is keen to raise awareness of IBD and funds for vital research which she is sure will one day result in a cure.
Liz stays in touch with those who donate regularly to Cure Crohn's Colitis and publishes updates about fundraisers and events whenever possible.